Development of a personalized decision aid for breast cancer risk reduction and management
نویسندگان
چکیده
BACKGROUND Breast cancer risk reduction has the potential to decrease the incidence of the disease, yet remains underused. We report on the development a web-based tool that provides automated risk assessment and personalized decision support designed for collaborative use between patients and clinicians. METHODS Under Institutional Review Board approval, we evaluated the decision tool through a patient focus group, usability testing, and provider interviews (including breast specialists, primary care physicians, genetic counselors). This included demonstrations and data collection at two scientific conferences (2009 International Shared Decision Making Conference, 2009 San Antonio Breast Cancer Symposium). RESULTS Overall, the evaluations were favorable. The patient focus group evaluations and usability testing (N = 34) provided qualitative feedback about format and design; 88% of these participants found the tool useful and 94% found it easy to use. 91% of the providers (N = 23) indicated that they would use the tool in their clinical setting. CONCLUSION BreastHealthDecisions.org represents a new approach to breast cancer prevention care and a framework for high quality preventive healthcare. The ability to integrate risk assessment and decision support in real time will allow for informed, value-driven, and patient-centered breast cancer prevention decisions. The tool is being further evaluated in the clinical setting.
منابع مشابه
Designing and validating an information management software for breast cancer treatment
Background and Aim: Breast cancer is the most common type of cancer in Iran and around the world. It has been recognized as the most significant cause of cancer deaths in developing countries such as Iran. Considering the necessity of accurate and timely diagnosis of this disease, the aim of this research was to design and validate an information management software for the treatment of breast ...
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